Family yoga

Family yoga with Alessia, here at home, on a Saturday afternoon, is always a highlight of my week. She is wonderful.

Today we went on an amazing journey with one tiny snail and a huge humpback whale. Together we brought the tale of adventure and friendship to life.

If you are interested in having a little of her light in your life you can find out more by visiting her Facebook page: Shantara Yoga.


Finding independence…

This week has been a pretty incredible week. The boys went to their first after school drama class at the local theatre and came out buzzing! I can’t tell you how amazing it felt to see them confidently go off without me. The world just opened up that little bit more.

And then at home and at school Thomas has been embracing his new found independence. This might not sound like much but this boy is walking and playing. He isn’t needing anyone behind him in case he falls. He has got this.

Life is good. Life is full of possibilities.


Time for a rest…

One more week of juggling school and physio and riding and swimming. It’s time for a well deserved rest for this little warrior. Have a restful Christmas and see you in 2019. It’s going to be a great one. With love, Us x


Back to Brainwave

Our now annual trip to Brainwave did not disappoint! Thomas showed the team what he could do and we leave feeling so positive and excited, actually excited by our new programme. But even more than all of that, I feel listened to and reassured that so many of the decisions we have made since Thomas has had SDR have been the right ones for him. It’s been hard believing this and hard trusting that we were supporting him and his body enough. Thank you Brainwave for truly, truly being there for families like us who struggle to navigate ourselves on this journey.