2020 is looking bright!

2020 feels like it is going to be a good year for Thomas. He drew this picture of himself today which I think speaks a thousand words.


Swimlab International – Belfast

Day 1 of Swimlab International in Belfast and look at him!

Thomas and Brian flew out yesterday to attend an intensive block of swimming with Paulo Swimlab Webb and his colleague Emily and the connection was instant.

We are two years Post SDR now and Thomas, understandably, is beginning to tire of relentless hours of physio. He is wanting and needing to feel more freedom so we are hoping (and praying) the pool may offer him this opportunity.

It’s hard not being there to support him and ask lots and lots of questions but daddy has got this and it means I get to spend quality time with my other gorgeous boy.



Another 10 hours of physio this week for this CP warrior. No complaining, no drama, just pure grit and determination. Let’s hope the Bristol team can see how much he has progressed on Tuesday when we go for our 2 year Post- SDR review.

Go Kids Go!

Another FANTASTIC workshop with GO KIDS GO! on how to really get the most out of your wheelchair. This time Dylan joined in on the fun and it was great for Thomas to see how well he has mastered wheelies since last year!

Roy, the trainer, is so positive and so empowering. One thing he said in passing was ‘…get involved in your journey…it’s your journey’. I will try to be mindful of this as we continue to move forward with their increasing independence.

Summer Footsteps

Yet again, Thomas has worked hard EVERY day this week at Footsteps. He has put in 10 hours this week but due to the long weekend he will only have 8 hours next week. Only!

However we have also had some lovely afternoons sharing time with friends, baking, making Lego, eating ice cream and completing the library challenge so there feels a balance.

Here’s to a restful weekend and to making the most of the time we have left before school starts.

Superhero Tri

8 more sleeps. We have received our email confirmation and we are in Wave 12, starting at 4pm if anyone fancies coming along to this incredible event In Windsor NEXT Saturday.

We have been assigned Captain Marvel as our Superhero which feels very fitting – powerful and strong-willed!