Today is the day we hit the headlines!  We have been featured on the front page of today’s Oxford Mail.

The paper came to us a few weeks ago, when one of their writers came across some of our publicity for our fundraising activities.  She got in touch, intrigued by our story and wanted to know more.  So she came round to see us and asked a few questions.

In the meantime, we also had our day at the football (see post below, 19 March), when one of their photographers took pictures of us too.

This all culminated in a lovely story in today’s paper, talking about the journey we are on. What was nice was seeing them also revisiting some other families they have featured in the past, who have been going through similar journeys.  We are clearly not alone in facing these challenges, so it’s nice that we are able to help raise awareness of the condition, and the lack of current NHS support for SDR.

You can read the story here.